Thursday, March 26, 2009

A Message To People WITHOUT Fibromyalgia or Chronic Pain Illnesses

Hello Everyone,

First let me tell you how much I appreciate you every single day. You are more important and vital than you realize and YOU MATTER!

Now, a message to those who do NOT live with Fibromyalgia or other chronic pain illnesses:

I HAVE to talk with you today before one more second goes by...

Listen, I got a message from one of my friends today and it was so blaring, so blistering, and so angry and it stung me to the core. It also filled me with deeper compassion and depth of love for my friend because they absolutely 100% do NOT understand the ravages of Fibro and chronic pain and it is hurting them SO badly inside.

I'm going to talk with you as plainly and as bluntly as I can today because you HAVE to know this if you are going to commit to loving someone with Fibro or chronic pain. Whether you are a friend, a boss, a loved one, a significant other, a parent, a spouse, a child.... no matter who you are, YOU HAVE TO KNOW THIS before one more day goes by.

There is NO way that your PWF (Person With Fibromyalgia) or chronic pain illness can predict when or how long a flare is going to happen. There is NO predictability, NO control, NO reason or rhyme to this "syndrome". It has it's own power and it's own agenda and EVERY PERSON IS DIFFERENT who has it. Some of us can function at 3/4 capacity, some at 1/2 capacity, some at almost zero. Some of us have days when we're almost 100% functional and then the next day we can be virtually incapacitated in the snap of a finger. Some of us can be out with you, having a good time, everything is going well, and WHAM!!!!! fibro pain will hit us like a freight train out of no where and it's all over.

**Husbands and Wives - Some of us can be in the middle of intimacy with our lover and everything is wonderful and sexy. Then in the blink of an eye fibro pain will absolutely grab control of our body and the pain can stop us dead still right in the middle of things. It's humiliating, it's embarrassing, it's horrifying, it's maddening! You feel like you are "broken" or "dysfunctional". Some of us wonder if our lover will stay with us or wander outside of the marriage for fulfillment. Some of us live with that fear EVERY day. Then there's the pressure of reassuring our spouse that it's NOT THEM and that we love them with every fiber of our being. We WANT them sexually, emotionally, spiritually, physically,....in every way possible, but we just CAN'T perform right at that moment. It's excruciating to have that let down and know we have NO control over the fact that it happened. For a PWF, their sexual identity can be destroyed because they can feel like they're not attractive any longer or "hot" to their lover any more. It can be very dangerous to a marriage if you both don't deal with Fibro in the most basic of terms and find a way through it. It may mean re-scheduling intimacy for another time, it may mean only one of you gets to have a physical release at that moment and the other gets to have theirs later when you both can be together again. But let me say this: ALWAYS, ALWAYS, ALWAYS, MAKE THAT DATE FOR LATER AND KEEP IT. Don't let it pass, don't keep your lover waiting. For goodness sake dont' stop flirting communicating with your PWF that you want them, are attracted to them, that they still turn you on. Reassure them that you're in this together and that your physical relationship is precious to you.

PWF's when you feel better, go to your spouse and MAKE time to get together with them. They need YOU as much as you need them. Guard your marriage bed with ferocious tenacity and DON'T let Fibromyalgia steal your physical relationship away from you. This syndrome doesn't deserve that kind of sacrifice. Are you hearing me? FIGHT FOR YOUR QUALITY OF LIFE!

Many of us that are PWF's hide our symptoms as much as we can. We fake our way through in order to sustain some type of semblance of our relationships. We grit our teeth and bear it and when we are alone, we pay for it with worse pain both physically and emotionally. The loneliness can be a silent prison for us that not one other person ever sees.

If you love someone with fibro, I want you think very hard about what I just wrote in that last paragraph.

I want you to make a commitment to remember it and be aware of it. I want you to create a safe haven for your PWF or person living with chronic pain where they can be honest with you when they are in pain and not have to suffer it alone. That is a huge way that you can help your PWF or person living with chronic pain to fight. You can be a hero today if you choose to be. The more a PWF or person with chronic pain can relax and be free to manage their symptoms without having to hide, the LESS PAIN they will have and the less length of time they will feel that pain. It helps the muscles to remain as relaxed as possible in their body.

What you have to know is that there will be flares that last days, sometimes weeks, maybe even longer. It won't be all of the time, but for some of us that happens frequently and for some of us it is the "luck of the draw" that day. Again, there is NO control over it.

Almost every single PWF I've met is a tough fighter and not willing to lay down and just allow fibro to consume them and give up. Let me tell you,.... we are some of the toughest and most tenacious people out there. It takes a great deal of strength mentally and physically (and for a lot of us, spiritually) to manage fibro on a day to day basis. Here's the truth actually: Fibro isn't day to day, it's minute to minute. We live one minute at a time and that's the cold hard fact.

If you are going to choose to love a PWF and be active in their life then you have to be willing to commit to that truth and roll with it. No condemnation, no blaming, no suspicious wondering that they're "faking", no pressure to "get over it". You wouldn't do that with someone living in a wheelchair, or living with cancer, or living without a limb (I'm just using some examples), don't do it to your PWF. Just because you can't see their pain doesn't mean it's not real or any less difficult to manage than any other devastating illness or situation. IT'S THAT REAL.

This is exactly why we absolutely need more research, more funding, more exposure to fibro in the media, in the medical community, and in society. This little whopper affects MILLIONS of us every day and it is devastating in many ways. It is no less important that any other cause or sickness out there. It is silent, it is invisible, it is dramatic, and it is costing us millions of dollars a year to manage it.

**Employers - If you have an employee living with Fibromyalgia I URGE you to please find out information and learn all you can about it. If they are a good worker and you want to keep them around, then make the investment in them. Find ways to help them be more comfortable at work or more able to manage their symptoms. Rally around them and give them support. I doubt very seriously that you will be sorry. If anything, when the PWF is feeling better they'll work harder than any other employee you have in order to make up for the down time they may need once in a while if they know you have their back. Most all of us are driven, responsible, hard working people who just need a chance to keep going and keep being a productive member of society.

We don't want pity, or sorrow. We want you to be informed, be active in helping us manage our symptoms, be willing to listen, be willing to stick it out with us through thick and thin and fight by our side. We want our dignity. If we want to be private in our pain because it's ugly or embarrassing that day, just let us have that privacy. Maybe we won't wash our hair that day or get a shower or even brush our teeth. Sometimes it's that way and we just don't want you to see us like that. It's ok. It's not going to bring the world down. It's just a little "break" and then when we're feeling better we will let you see us again. Sometimes we just need to be private in order to have some dignity. Especially if we are married PWF's! Treat us like you would if we were in a terrible accident and you had to make adjustments in order to help us through it. Don't get angry, EXCEPT at the illness itself.

PWF's or people in chronic pain didn't ask for this, they didn't do anything to "catch" it, they didn't go out and decide one day to become this way. It happened. That's it.

If you love us, let us love you back. Let us love you in the best way we can. We can't go back to being the same person we were before Fibro unless it leaves our body. Wishing for it or trying to force it, isn't going to change that.

Let us help you help us. Let us be free in the moments when we are relatively pain free. Let us experience the relief and fun and plain enjoyment of the moment as much as we can, let us try and exert ourselves and give it all that we've got in that moment. Then when the pain comes, allow us to deal with it until it subsides.

Be our hero.

YOU MATTER to us.

Do we matter enough to you for you to learn as much as you can? Read as much as you can? Get involved as much as you can? Roll with the punches as much as you can? Take advantage of every pain free moment with us as much as you can?

Look at your PWF or person living with chronic pain today. Take a good look. The person you knew before this hit, is the same person trying to fight it. You can let them fight alone, or you can take up the sword and fight with them. Trust me, you won't be sorry. Your relationship will take on a whole new level of strength and determination and bonding than you realize. You may just find a person you didn't realize was there, and you might find out that you admire them very much. You might find a different you.

With much respect,
Sherri

Tuesday, March 24, 2009

Tears Streaming and Hand Extended

My readers and friends,

Today I'm sitting here with tears streaming down my face. The pain of this fibro flare is just excruciating this morning. I'm back on my cane (which I HATE) and I'm trying to do the most menial of tasks. You know what I'm describing don't you...(((HUG))).

I just wanted to reach out to you and pretend that we're in a big circle, bearing one another's pain and understanding to the complete extent, the burden of Fibromyalgia in one another. To go ahead and let down and let go of my tears among my friends with fibro where I can be weak for a moment and I can lean on you for just a moment.

You keep me going. This blog and my books keep me going. But most of all, The Lord Jesus Christ keeps me going. He is so merciful and kind and I love Him and trust Him.

Will I ever be healed from this illness??? Yes!! Either here...or when I go home to my Lord. I WILL be free! The timing is all His and in the mean time I will lock arms with you my fibro friends and I will keep fighting along side you.

Thank you for letting me share with you this morning. And remember.... YOU ARE NOT ALONE.

With much love and thankfulness,
Sherri

Monday, March 23, 2009

Support Group Information

Great Information From http://www.fmnetnews.com/!

The Following Was Retrieved From: http://www.fmnetnews.com/resources-groups.php#start on March 23rd, 2009

"Support Groups
Local support groups offer their own individual format. In addition to friendly gatherings, groups may host speakers to discuss the latest in therapies and treatments, or offer a professional’s point of view in managing life-altering chronic illnesses. Our listings also include groups that provide phone support only.

Anyone can obtain support group information in their state by sending a business-sized, self-addressed, first-class stamped envelope to:

Fibromyalgia Network
P.O. Box 31750
Tucson, AZ 85751

Request a support group listing for connections in your state today.

Why Our Support Groups Are Not Online
The Fibromyalgia Network does not offer listings or contact information on support group leaders online to avoid misuse, solicitation, or contact by unscrupulous or unethical entities seeking to promote their own gain. This list is provided as patient support for reference only. The use of these lists for marketing, advertising, or any other promotional purposes is prohibited.

Start a Support Group
Forming a support group in your area could be your best medicine. Not only does the involvement and activity serve an important purpose of bringing people together to share common issues, successes, and experiences, but also it provides group leaders a sense of fulfillment and connectedness. The Fibromyalgia Network offers free resources and support to anyone interested in starting a local support group.

The Support Group Leader Starter Kit is a 40-page packet that contains information on getting started, working together, tips on keeping the group going, understanding challenges you may face, self-help coping articles, advocacy and research, and links to other useful websites.

The Support Group Leader Starter Kit is available in PDF format and can be downloaded right now free of charge.

If you prefer to receive the kit by mail, please send us a 9" x 12" self-addressed envelope with $4.95 postage affixed. Don't forget to tell us that you are requesting the Support Group Leader Starter Kit.

If you are interested in starting a support group or know of one in your area, e-mail groups@fmnetnews.com with your questions or comments."

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Here's To Your Success!

Wednesday, March 18, 2009

From Science Daily: Fibromyalgia Can No Longer Be Called The 'Invisible' Syndrome

Hello Everyone,

I found this article today while doing some research. It really boosted my spirits in regards to my passion for Fibromyalgia to be legitimized as REAL. I wanted to share it with you too. Click on the link to read the entire piece.

I've got you all on my mind and hang'in in there with you!

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Retrieved from: http://www.sciencedaily.com/releases/2008/11/081103084040.htm on March 18th 2009

"ScienceDaily (Nov. 4, 2008) — Using single photon emission computed tomography (SPECT), researchers in France were able to detect functional abnormalities in certain regions in the brains of patients diagnosed with fibromyalgia, reinforcing the idea that symptoms of the disorder are related to a dysfunction in those parts of the brain where pain is processed."

In the past, some researchers have thought that the pain reported by fibromyalgia patients was the result of depression rather than symptoms of a disorder. "Interestingly, we found that these functional abnormalities were independent of anxiety and depression status," Guedj said.

According to Guedj, disability is frequently used in controlled clinical trials to evaluate response to treatment. Because molecular imaging techniques such as SPECT can help predict a patient's response to a specific treatment and evaluate brain-processing recovery during follow-up, it could prove useful when integrated into future pharmacological controlled trials.

"Fibromyalgia may be related to a global dysfunction of cerebral pain-processing," Guedj added. "This study demonstrates that these patients exhibit modifications of brain perfusion not found in healthy subjects and reinforces the idea that fibromyalgia is a 'real disease/disorder."
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Using Continuing Education to Propel Your Business Success

From my book: "How To Use What You Already Have, What You Already Know, & What You Already Love To Create Income" Copyright 2008

Regarding using continuing education to propel your home based business:

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"Education, no matter what form it takes, is key to your success. Choose to become a life- long learner and your value both in your professional life and your personal life will increase more and more over time.

Don’t just choose to educate yourself on your chosen career path, choose different things in life to learn about as well. You never know who you’re going to meet who can propel you to the next level! Being able to converse knowledgeably on a wide range of subjects immediately gives you OPTIONS and OPEN DOORS. I can’t stress this enough! Don’t settle for being a “one track train” because eventually you will pigeon hole yourself and limit how far you can go. Be an expert in your career field, but open to diverse subjects as well in order to keep yourself interesting and MEMORABLE to those you meet! This is a key success tool of the most wealthy ‘movers and shakers’ in this world. Take a cue from them.

Find outlets for your learning. Begin an online Blog, a Squidoo page, write an eBook, begin a newsletter, start a website, comment at online forums, and even write commentaries to your local newspaper editor. Get your name out there and drum up interest. This is by far one of the most intelligent and least expensive ways to market not only yourself but your products and/or services. Simply ad your link or information to what you’re writing so that people can see what you do and where to find you. (Hint: consider getting an inexpensive business phone number in order to keep your customer calls separate from your personal ones. Some services like RingCentral offer packages that include your number and fax plus a host of other benefits and tools to use.)

The more education you get, and the more you get yourself out there the more your chances of success become. Not only that, but your credibility with potential customers goes up as well. The image of your business becomes more solidified and you’re perceived as a stable person to do continued business with.

Do your research and find out different ways to become educated. Schools, eBooks, CD’s, DVD’s, Internet research, libraries, newspapers, magazines, and so forth are great tools! You don’t have to spend a great deal in order to learn a lot. Search for discounts, used books, free newsletters, website subscriptions…etc. Most information is free and only takes the investment of your time to reap the rewards from it!If you want to learn a specific aspect of your business, such as bookkeeping, go find out if there is a free course or information you can learn it from, find a mentor to help you, read customer or student reviews carefully before deciding on your chosen resource. Be sure it’s going to be perceived as the most up to date information for your field. Learn to use software programs, design tools and graphics, and do-it-yourself tools to get yourself ahead and keep your budget low until you can afford more expensive resources if you choose to use them." Copyright 2008 - By Sherri Kohls
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You can get your copy of the book by clicking on the link to the right hand side of the blog or by visiting me on eBay for a substantial discount! It's a brand new day today, it could be YOUR day today!

Here's To Your Success!

Saturday, March 14, 2009

Lyrica Commercials Could Do More

Hello Everyone,

I've been thinking about this for quite a while. The Lyrica commercials I've seen are leaving me feeling somewhat "let down" as far as communicating a more realistic message to the public.

Let me explain what I mean:

The three versions I've seen so far show middle aged Caucasian women who look completely put together, normal, and relatively happy with life. Yet they make a small statement about how their "fibromyalgia pain is real". They make taking Lyrica seem like the answer to all answers about managing their Fibro pain and then go on with their lives as if Fibro is only as bothersome as a bout with a bad headache. It just leaves something to be desired. I think Pfizer could do a far better job with these commercials assuming they are posturing themselves as Fibro advocates.

First of all, I believe there should be several new commercials made showing different demographics; Men, Younger Men, Younger Women and also a Teen version. Also there needs to be a representation of more races than just middle aged Caucasian women. Although Fibro definitely targets this particular demographic (and I certainly mean no offense to these ladies whatsoever) I believe only showing this demographic is limiting and doesn't do justice to the real representation of the FC (Fibromyalgia Community). It almost makes Fibromyalgia look like a syndrome that only targets the same age group as those experiencing menopause and it also makes it look like a "women's ailment" only. Both are FAR from the truth.

I'd be much more satisfied with a more realistic representation of what Fibro looks like on a day to day basis. Perhaps scenes showing the person struggling to get out of bed, struggling to get dressed, forgetting things, struggling to walk and needing a cane, extreme fatigue, a loved one helping the PWF (Person With Fibromyalgia) to get up, perhaps a teenager struggling with not being able to participate in normal teen activities or struggling in class, a man struggling with work or perhaps contemplating how he's going to take care of his family while dealing with his Fibro pain, and so on for starters.

There could be a scene with each of these individuals talking with a doctor and then have the person testify how Lyrica assists in helping them get a better handle on the previously mentioned symptoms and circumstances. Lyrica helps and I'm very grateful for it, but is not the end all beat all answer to Fibro pain. I don't think it is for a majority of us. I think many of us do better with it, but for many of us it is more of an "assistant" than the final medication that works 100% of the time. Lets just be honest with the FC and Pfizer would receive much more support and maybe even accolades from us.

I believe the current Lyrica commercials are lacking in communicating the true nature of FMS and it's devastating effects on the PWF and their families and loved ones. They could be a vehicle in communication that targets FMS as loudly and as hard hitting as say commercials on other syndromes and illnesses that are devastating and wide spread. I'm just tired of the FC being pushing into the background of society and "hushed" because the FACT is that it affects MILLIONS of us. FMS needs to be SHOUTED about and the need for research and a cure needs to be put squarely in the face of society so that we can begin to be taken seriously in a more wide spread fashion. Pfizer is perfectly positioned to be a voice for us if they chose to use it more loudly.

Look, FMS is just as limiting and serious as any other debilitating illness or disease and it deserves the correct response by the medical community. We need advocates who will defend us against the skeptics who keep us blanketed in silence because they don't think it's a "legitimate" illness. Please.

My friend Bob Hall over at MenWithFibro.com listed an article showing that FMS currently affects over 12 MILLION of us in the United States alone!

(Retrieved from http://www.menwithfibro.com/html/4_.html on March 14th 2009)

Just look at some of what his article says:

"Think for a moment, that is twelve million people! Over twelve million people suffer with this disease. And we have to listen to doctors tell us it is all in our heads.

Do you realize this is the second most common diagnosed rheumatologic disorder (less common than osteoarthritis but more common than rheumatoid arthritis).

How loud could twelve million people yell? Considering this is election year, do you think over twelve million people could sway the popularity of a candidate?

And these twelve million people don’t look sick. Or so we have been told. So... my friends, this is over twelve million good looking people. Well, at the very least, this is twelve million people who don’t look sick, who are in fact, sick.

What does it cost society? Researchers for fibromyalgia estimate the US costs alone, run from 13-15 BILLION dollars each and every year. Fibromyalgia is said to account for 1-2% of the nation’s overall productivity. The Journal of Rheumatology released information in 2003 stating the total annual cost of fibromyalgia claimants were far more than twice as high as the costs for the typical insurance beneficiary."

I'm in the process of writing a letter to Pfizer to express these ideas and ask them to do more commericals that will better represent the FC. I personally like Lyrica as a medication choice. I've had pretty good results with it, so I'd like to see the commercials for it used much more effectively in garnering support for the FC along with being a medication choice. Do you know what I mean? In other words; why not use the commercials to send a message ALONG with marketing the product Lyrica as well. Why not show more support for the FC?

I have this link http://www.pfizer.com/contact/mail_general.jsp for the contact information for Pfizer if you'd like to write them as well.

Also here is a call center number for Lyrica and the official Lyrica website:

http://www.lyrica.com/index.aspx?source=google&HBX_PK=s_lyrica&HBX_OU=50&o=230856031661636540

Pfizer LYRICA Call Center for Fibromyalgia Patients 1-888-5-LYRICA (1-888-559-7422)

LET'S MAKE SOME NOISE!!

Here's to Your Success!

Wednesday, March 11, 2009

Permission to Get Real - A First Step For Those Who Love And/Or Are Caring For A Person Living With Fibromyalgia.

Hello Everyone,

I'm in the middle of writing my next book and I wanted to post an excerpt from it here because I had those who are affected by Fibromyalgia but don't actually have it, on my mind today. It's so important to give them encouragement and help as much as the Fibro patient. One of my goals is to bridge that gap and bring a real emphasis on allowing both people to receive the support they need and deserve.

Here's To Your Success!

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The following is an excerpt from "It's Happening To YOU Too" - Copyright 2009

"Taking an inner look is not an easy thing to do for some people, for others it’s something they are familiar with and are often introspective. Whatever the case is for you personally now is the time for you to take a few minutes or longer to sit down and think about nothing else except how you feel about the fact that your loved one or friend has Fibromyalgia.

Get out a pen or pencil and begin writing down everything you think of. Don’t put pressure on yourself, simply write down the thoughts that come to mind. It may be feelings, lost plans, frustration, questions, confusion..etc.

The bottom line is, you need a concrete idea of exactly how this situation is affecting YOU.
This is your time, and your private thoughts and writings. You do not have to share them with anyone unless you choose to. Don’t skip this step. If you continue to keep going on “auto-pilot” at some point there is going to be an obstacle you are not going to be able to assess clearly unless you take back control and really know how all of this is affecting you personally.

You have a right to admit that Fibromyalgia is not just happening to your friend or loved one. It is happening to you too. While you may not be experiencing the physical symptoms and challenges that your PWF (Person With Fibromyalgia) is experiencing, you are experiencing a very real effect on your day to day relationship with that person.

Without completing this very important first step, you are robbing yourself of the opportunity to be released from a great burden of stress and overwhelming emotions. You owe it to yourself to be permissive about this. Remember these are your private thoughts and feelings and you don't have to share them with anyone else unless you choose to. There may be some that you definitely will want to share with your PWF so that you both can understand each other more clearly and effectively, but as far as anyone else is concerned you can definitely keep these thoughts and emotions private.

A word to men: Very often men have the hardest time with this step because you are naturally equipped to “fix” rather than talk things over in depth. That’s OK. You don’t have to become more “feminized” to do this. What you do have to do however, is get real with yourself and be willing to face how exactly you are being affected as a person. Give yourself permission to go ahead and write things down. You can tear it up afterward if you want to. The point is, you have to come face to face with your “opponent” in order to know how to conquer them and win!

Every team has a game plan before they go into competition right? Well, think of this as your inside look into the enemy camp. It’s your time to figure out your game plan and strategy for overcoming your enemy the FibroMonster and it’s tactics against you and your loved one or friend."
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This is step 1. I'm going to be posting other tips and information here on the blog in the near future as well. Above all, remember whether you are a PWF or a person caring for and/or who loves a PWF, you are not alone in this.

Tuesday, March 10, 2009

Awesome Servants In The Fibro Community

Hello Everyone,

I had a doctor's appointment yesterday and I came home feeling very frustrated and even MORE bound and determined to find a way to get our voices out there and our cases heard even MORE both in the medical community and in mainstream media!

First, let me say that my mood had NOTHING to do with my medical team. I have 2 of the absolute BEST people in the medical community on my medical team in my opinion. I see John R. P. Tesser, M.D. and Scott Brown P.A.-C. here in Arizona and I have to tell you that they are phenomenal! Every appointment, my team takes time with me as if I were the only patient they are seeing that day. (Great communication, compassion, information, and help.) They are willing to adjust medications and treatments to make life more manageable for me and allow me to be in control of myself instead of them assuming control over me as a patient. If I say I've experienced something new, they want to know all about it, they don't scoff or act incredulous over it, and they don't treat me like an invalid. I LOVE my med. team!

Having said that, something I admire a great deal about both of these men is their integrity and their extreme dedication to the Fibro community. That has turned out to be a double edged sword for them AND for me and their other patients because they are unwilling to say "You are disabled and unable to work" on paper or in person.

Here's why: When they are interviewed by Social Security, they are asked "What proof do you have that "so and so" is disabled medically?" "What tests show the disability?" and you can imagine the other sorts of questions. The answer to these in all honesty is "NONE" and these men are backed into a corner professionally because there are NO definitive tests that prove Fibromyalgia, no screenings or labs that show "Yep, there's the culprit in his or her body". We don't have ANYTHING other than symptoms and effects to show we actually have Fibromyalgia and we CAN'T prove it definitively.

Now my team will provide every record, every document, and anything else that records my appointments, symptoms, medications, etc.. to support an application for disability, but both feel that writing "disabled" without any provable tests and conclusions is not being completely honest. And may I say that both work very hard to find those answers and what we need so that someday they CAN prove it.

I don't hold any of this against them and I completely understand where they are coming from. At the same time I am SO frustrated for us as Fibromyalgia patients and for those of us who's symptoms are so painful and debilitating that working a mainstream career is just not an option. The possible employment we could obtain is narrowed a vast amount because our fatigue is unpredictable, our pain is unpredictable, our medication side effects are sometimes prohibitive, and the list just goes on...

I'm just bound and determined to find a way to SHOUT about Fibro the way society shouts about other diseases like Cystic Fibrosis and Breast Cancer. The numbers don't lie...there IS something substantial going on here and it's time we move from "Syndrome" to definitive "Disease"!

Ok.... I'm done ranting. For now. :)

I just want to highlight an AWESOME resource for you men living with Fibromyalgia and your spouses and loved ones. MenWithFibro.com is an incredible website just for the forums alone! It's not "preachy", it's honest and it's real.

The founder Bob Hall is a magnificent person. Bob is one of us and he is dedicated to reaching out and helping the male fibro community. We've spoken by email on several occasions and Bob is one of those peers that I have been blessed to meet that keeps me encouraged and keeps me going. He and I agree that it's a HUGE undertaking to keep reaching out and keep going in order to make sure the FC (Fibro Community) has good and usable information, especially when you're experiencing your own flares and days when the FibroMonster is kicking your butt.

MWF has leaders who hang in there and make sure that the men in the FC and their loved ones have an open and accessible place to turn at all times. If you go over and visit, let them know you found them here at P.O.F. We work hard to tell our individual readers and visitors about each other's site in order to make sure you have the MOST available information and resources we can give you. Plus it gives us a little boost to our day to hear that one of our visitors has come over from one of our sites. It's good encouragement. :)

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Now a word about Serrapeptase:

I have not had any ill side effects while undergoing my experiment with SerraGold. I feel that it's going to take some time to see any long term relief that will come from it, but in the mean time on a daily basis I do feel some pain relief, and a definite change in my ability to breathe. I am happy with Serrapeptase so far and will continue to take it and keep you posted.

Well everyone, I've bent your ear long enough today. Please feel free to email me if you have ideas for ways to get our case out there, if you have questions, or if you have things you'd like to share but not necessarily here on the blog.

Here's To Your Success!

Thursday, March 5, 2009

Microbial Biofilm Bacteria and Mycoplasm May Be Linked to Fibromyalgia

Hello Everyone,

I'm currently looking into this new information and will post more once I have some substantial news. I want to go ahead and post the terms "Microbial Biofilm Bacteria" and "Mycoplasm" so that you can also begin to do some research and start asking questions to your health care providers in the mean time.

This is fairly new information for me, and there is quite alot of "hunting and pecking" I am doing in order to find some substantial articles and information for you.

If anyone has solid (more scientifically written than "laymen" speculation) information or article/website links that have more to tell us please go ahead and post those in the comments section for us.

**Here is one link that is very interesting. It is more tied to CFS, but since many of us with Fibro also have CFS we should stand up and take notice: http://www.shasta.com/cybermom/mycocfs.htm

Here's to Your Success!
Sherri